← Return to Sjogren’s Syndrome – Introduce yourself and meet others

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@jamienolson

Hello @kimber3429, Welcome to the group. Thank you for posting and sharing your experiences. How scary to wake with your throat closed off! Do you have access to a physician that specializes with Sjogrens?

While waiting for other members of the group to reply, please see the link below. You may find this thread of members talking about Prolactinoma helpful-
https://connect.mayoclinic.org/discussion/prolactinoma-then-some/

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Replies to "Hello @kimber3429, Welcome to the group. Thank you for posting and sharing your experiences. How scary..."

So far not yet. I have just recently found out about it. My case is being reviewed by a Harvard Dr. That specializes in SS. Just to confirm my Diagnosis. It showed up in my bloodwork. I thought it was more Lupus. But my SS is primary. I had to be off work for a few months. The fatigue severly deteriorated my quality of look life. I have really severe brain fog to the point i can hardly create sentences, talk or comprhend anything. Which i do technical support over the phone for a living. Which ive been at my job 6 years. It has me questioning if i can even continue work with the amount of mistakes ive been making. Its been devestating. I am on Plaquenil now and prednisone. Which really helped the first fee months. Im ferling the effects of brain fog really bad again along with severe aches and pains. After having a non stop flare up for 6 months i thought i was starting to make progress but now i feel like one step forward, 2 steps back. The medication they gave me for the prolactinoma was toxic to my body. So my options are now limited there. I do see a rheumatologist, which i am not sure what he specializes in. This will be my 3rd visiit coming up. My eyes were swelling shut everyday for months and i couldnt get any Drs to listen. Its been a frustrating experience