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Loss of smell and taste after head injury

Just Want to Talk | Last Active: Jul 30 2:49pm | Replies (30)

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@kayabbott

Brain injuries are horrid; you feel like you have lost yourself, abilities are dented or missing, and people treat you differently. Recovery is a very slow process but it does happen; the brain rewires. Have your doctor/neurologist sign you up for cognitive physical therapy (PT) and consider talking with a therapist specializing in brain injuries. I did a few group therapies which were a bit like "One Flew Over the Cuckoo's Nest." My moderate TBI was when I was 37, 33 years ago, rollerblading with full protection except for a helmet. My skull was fractured in two places, I had cerebral spinal fluid leaking out my left ear, permanent damage to my basal frontal (emotional, smell and taste) and left temporal (word finding) areas, tinnitus (my brain blocks this out unless I'm stressed), and balance problems (PT). Most of the recovery was a stair-step process with improvement followed by plateaus. My olfactory bulbs were damaged enough that after a few months I could taste butter and chocolate, other flavors took months or years. I would eat things and tell my brain what it should taste like. My dreams were about food. Texture becomes important in food. The emotional recovery is extremely hard; treat yourself well and give yourself time to heal. Try to find something to look forward to each day. I have celiac so am on a gluten free (GF) diet, and mostly FODMAP. Probiotics such as yogurt, kimchi, etc have good texture and help with SIBO. Consider keeping a diary of what you are experiencing, including any steps in recovery, and any foods or stresses that impact your health. Recovery felt like two steps forward, one step back so expect to be emotionally slapped around by what may feel like going back, but the brain is just resting. Once you are there, games help with rewiring. My smell and taste recovered after some years, and cooking is one of my big interests. I hope that you have supportive friends and family, but they tend to be a bit lost, not understanding where a TBI is and what you are going through. If you would like some GF recipes, I have a lot of them that are healthy with good texture. Findmeglutenfree is an app that has safe places to eat.

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Replies to "Brain injuries are horrid; you feel like you have lost yourself, abilities are dented or missing,..."

Thank you very much. This has been life altering.

I can’t have sugar or flour of any kind. I would be grateful for receipts. Thank you Kay.
I have trouble with smell and taste. When I smell something it usually is not the real smell. To me it’s a bad smell but to other person it’s nice smell.
It’s late. I better try and sleep. Lol.