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Preparing for Bone Marrow Transplant: My mind is racing
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 8 11:10am | Replies (45)Comment receiving replies
Hello all,
I am here!! I' been here in the hospital at the Mayo Clini, Jax.. I'm set for my Transplant this Thursday. I'm getting increased doses of Chemo every two hours. I'm snacking on healthy foods and drinks. That seems to be working to keep any vomiting from happening. My head is no longer racing because the Team here is wonderful. Do worries.
I have housing setup at the Hope Lodge. That portion is all set. Weve had to stay at the Holiday Inn in the area. I've stayed at 3 different holiday inns. Do Note that the two Holiday Inn Express offered free breakfast. But the Holiday Inn did not. However, we needed to add two nights to our stay at the Holiday Inn. Once the front desk found out we were Patients at the Mayo Clinic, they gave us a discount. So, now my husband is here staying in the room at the hospital for the next two nights with me, then he will check in at Hope Lodge.
Food would be a big expense, but now that I'm in the hospital. I'm getting whatever comes with the room. Since I have LapBand, I eat small protons. That leaves a lot of food for my husband able to eat. Also, they've told us after I order my meal, I can order every 45 minutes to the kitchen. Of course, I would never do that. The Hospital unit have nice healthy snacks also. Hope this helps.
Replies to "Hello all, I am here!! I' been here in the hospital at the Mayo Clini, Jax....."
@avaleir
My husband will be admitted to Mayo Florida on August 14 for his SCT. Day 0 is Aug 21. I hope all goes well with your infusion day and all the +days thereafter.
Hi Ava,
My husband is day +50 on Aug 1, also your new re-birth day! He was diagnosed with AML in January this year and thankfully was in remission before his transplant with fully matched donor cells in June.
He spent a month in the hospital and was discharged to home. We go to the clinic once a week for close surveillance for the first 100 days. He has been stable, with only the need for Magnesium IV at home a couple times a week. He had a couple of minor infections right after he returned home but they resolved with antibiotics.
I want you to know you have a community here rooting for you and holding good thoughts for only the best outcomes for you. May your transplant bring you a lifetime of good health.
Please encourage your husband to ask questions of us as caregivers in case he needs any support. Sounds like you both have everything lined up for your lodging and care after the transplant.
Keep eating and enjoying your food as long as you feel like it. You and your husband will find ways to keep you hydrated and nourished even after your appetite wanes. Let us know if you’d like ideas from our experiences with successes and approaches others here have taken to get through that.
Please let us know how you are doing when you have a chance.
Happy Re-birthday!!
Mary
Good morning, @avaleir! Happy Rebirth-Day! You are joining an elite Chimera Club…having 2 sets of DNA! My husband prefers to use the definition in Greek mythology of a Chimera being a fire-breathing female monster with a lion's head, a goat's body, and a serpent's tail. He feels that is my spirit animal now!! 😂 Nah, but the infusion of donor cells has given me a 2nd chance at life. I’d have been gone 4 years ago by now if not for that amazing gift of life.
So, m’dear, this is a day of CELLebration as you are about to be given your second chance. Wishing you smooth sailing ahead and as you can see, you have a rooting section here with fellow members who have shared this experience. Most recently @katgob and @mary612 (her husband, Dane) and others to follow.
Please keep us updated when you’re feeling up to it. Air hug!
Hi @avaleir
I have been thinking about you. I hope all is going well.
We checked into Mayo Clinic Jacksonville today. They started Dennis' conditioning chemo today. His SCT is scheduled for next Friday. If you hear a booming voice, then see a really tall man, it is probably him. We will be here until about mid September and then we will be at the Hope Lodge.
Patti
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Hi @avaleir! I’ve been thinking about you and expected you were getting close to Day Zero! So August 1st is your big Re-birth day! This certainly isn’t the way you anticipated spending your first year of marriage, but hey, this gets the ‘sickness and worse’ parts over in your marriage vows…(sickness and health, for better or worse) 😉 Joking aside, I’m so glad for you that you’re able to get the transplant taken care of and onto recovery!
I think I mentioned before that @katgob had her transplant just over 100 days ago @mary612 husband is coming up on 50 days, I believe. @alive @edb1123 @kt2013 @jenmkr63 @tkidd51 along with myself, are just a few of several members who have had transplants over the years. So don’t hesitate to ask us anything that may ease your mind or your journey!’
Being at Mayo, I know you’re in the best of care. Your team will do their ultimate to keep you comfortable and provide everything you’ll need for your successful outcome.
If I remember correctly, the kitchen, at least at Mayo-Rochester closed after 6:00PM. I had meds to take in the middle of the night and couldn’t eat the pudding and other goodies in the transplant fridge (lactose intolerant) so I’d order extra banana bread to take with my late night meds…so plan ahead if you or your husband want snacks! 😉
When you’re up to it, please keep in touch. Our journeys become survival guides for other newbies who are going along the same path. Sending an air-hug!