Evenity timing between appointments

Posted by spiderplant @spiderplant, Jul 25 5:10pm

Can't find anything on the subject of spacing between Evenity appointments other than it must be once every calendar month. Was used to four weeks with the exception of one time they could only fit me in at 6 weeks. Now I have a 3 weeks 3 days gap scheduled. I feel edgy having the stuff in my system as it is but wondering if it's silly to worry about a few days. Any thoughts? PS - As many ask about others' experiences: I just had #7 with no (known) side effects / no discomfort at the location (belly or arms) aside of when they administer it.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@beanieone

I still had hefty co-pays even on Medicare with an Advantage Plan. I did have two injections in one calendar month, the 2nd and the 30th of May.

I understand you wanting to avoid the “after/what’s next” when finished with Evenity, @spiderplant. I started my research early because of my past Reclast infusion history and wanting to be able to do a maintenance med after Evenity within a relatively short period of time.

Have a great weekend, all. Cheers!

Jump to this post

Thank you for the posting! Is there a designated posting on “Evenity after/what’s next”?
Thank you.

REPLY
@vrgarden

I'm on Medicare and scheduled all 12 of my Evenity injections every 4 weeks on Tuesdays. Medicare paid for all and they were exactly 28 days apart.

Jump to this post

Hi @vrgarden, When you say Medicare paid for all, did you not have a co-pay for either the med or the office visit? I’m having trouble wrapping my head around this. Is it Medicare, our supplemental plans, or a combo of both that pay for Evenity?

I appreciate your input!

Happy Sunny-day. Cheers!

REPLY
@yingjichi

Thank you for the posting! Is there a designated posting on “Evenity after/what’s next”?
Thank you.

Jump to this post

@yingjichi, I believe there is/was a post addressing the selection of a post-Evenity treatment plan - mostly dedicated to Reclast and Prolia.

If you check and can’t find the post, let me know and I’ll try to find it for you.

Cheers!

REPLY
@beanieone

I still had hefty co-pays even on Medicare with an Advantage Plan. I did have two injections in one calendar month, the 2nd and the 30th of May.

I understand you wanting to avoid the “after/what’s next” when finished with Evenity, @spiderplant. I started my research early because of my past Reclast infusion history and wanting to be able to do a maintenance med after Evenity within a relatively short period of time.

Have a great weekend, all. Cheers!

Jump to this post

I'm facing the same post evenity meds problem have you figured out what to do?

REPLY
@gravity3

I'm facing the same post evenity meds problem have you figured out what to do?

Jump to this post

@ gravity3, I had positive previous results and no adverse reactions with Reclast. At 69, I thought it was too early to start on Prolia, the “lifetime” OP drug, although several health professionals tried to push it on me.

Docs don’t like to prescribe Reclast in patients with too many lifetime and/or recent infusions, however, after a long discussion with my new doc and a battery of x-rays and labs, he agreed with me.

The short answer (which I rarely provide) is Reclast - I had an infusion just this past Thursday. Except for a large bruise on the back of my hand, all’s well.

All the best to you as you make your choice. Cheers!

REPLY

I just finished 2 years of Tymlos and have been encouraged to begin Evenity to continue with bone building. I began hormone replacement therapy (bioidentical) thru my cardiologist a month ago but my rheumatologist feels strongly with my low numbers that I need to continue with a bone builder.
My problem is that we travel quite a bit and mainly between 2 homes that are 6 hours apart. I do have an endocrinologist in one city and my rheumatologist in the other…I will have to discuss this situation with them to see if I can alternate injection locations to make sure I don’t skip any injections. Any helpful feedback would be welcomed. I don’t want to wait too long before starting another protocol to build or hold my bone gains. 🌹

REPLY
@beanieone

@ gravity3, I had positive previous results and no adverse reactions with Reclast. At 69, I thought it was too early to start on Prolia, the “lifetime” OP drug, although several health professionals tried to push it on me.

Docs don’t like to prescribe Reclast in patients with too many lifetime and/or recent infusions, however, after a long discussion with my new doc and a battery of x-rays and labs, he agreed with me.

The short answer (which I rarely provide) is Reclast - I had an infusion just this past Thursday. Except for a large bruise on the back of my hand, all’s well.

All the best to you as you make your choice. Cheers!

Jump to this post

Thanks for the info.

REPLY

This discussion has come at the perfect time for me, and is probably going to save me a ton of money.
My first Evenity treatment was at the end of January. I used Amgen Support+ copay assistance, and their contribution took me to my policy max out-of-pocket for the year. All of my treatment since then has cost me nothing. There's still enough money available to me on that copay assistance card that I could do the same this coming January. [I verified with Amgen that it will still be available to me in January].
My 12th and last injection was going to be in December. Now, thanks to this thread, I've devised a stretched-out treatment schedule to make the last one January 2nd. If I had learned about this any later than this month, I wouldn't have been able to stretch things out enough, and would have had to schedule the last injections for December. That would have me set back thousands of dollars (which I can't afford to part with) in the new year. I realize that this will have an impact (hopefully a small one) on my overall BMD increase. I'm going to hedge my bets in the hope that the reduced financial stress in 2025 will more than make up for that.
Thank you @spiderplant for starting the discussion.

REPLY
@beanieone

Hi @vrgarden, When you say Medicare paid for all, did you not have a co-pay for either the med or the office visit? I’m having trouble wrapping my head around this. Is it Medicare, our supplemental plans, or a combo of both that pay for Evenity?

I appreciate your input!

Happy Sunny-day. Cheers!

Jump to this post

Thank you for asking for clarification, @beanieone. I should have said that Medicare paid their portion. then my supplemental paid their portion, then I paid my portion. The supplemental plan I had in 2023 was different than the one I chose for 2024, so my potion was different in 2023 than it was in 2024.
Another clarification as I researched dates since my injections were 28 days apart (except for 2 times I was out of town on the 28th day, so I scheduled them 29 or 30 days apart. Also, I had forgotten there was one month I received on the 1st of the month then again on the 29th of the month--and I remembered that the injections on the 29th were not paid for by Medicare. I'm conscientious and wanted to be sure things are paid for, so about a month laterI called the billing department of the infusion center. The person I spoke to assured me I didn't need to worry, they deal with this all the time and it's their responsibility to communicate with Medicare. A couple months later, I realized it still had not been paid, so I called the billing department of the infusion center again. A different person I spoke to told me the same thing--not to worry and that they communicate and pursue payment with Medicare. She appreciated my desire to be sure it was paid and encouraged me to leave it in their hands--so I did. That's why I had forgotten all about it until this discussion and I had to look it up in my paperwork to refresh my memory : )
I hope this is more clear. I really had forgotten all this. I was so happy I tolerated Evenity and had very good results on my DEXA scan. With info I gathered on this board, my own research, and discussion with my osteoporosis Dr., I began Prolia about 2 weeks ago.

REPLY

No worries, @vrgarden, there are things we’d all like to forget 😬. Interestingly, at one point, I was billed for one injection, not two, and it took the various moving parts about six months to catch up and bill me for the other half. I honestly was panicking a bit when some members posted that if the injections weren’t at least four weeks and a day apart that I would somehow be “back billed” for all of my injections.

Oddly enough, although I am not keen on Prolia, it is manufactured by Amgen, and so is Evenity. As I know my reactions/results with Reclast in the past, I felt that was the drug that made sense for me. I still do, however, need to be mindful of signs of femur frax. At least my new doc was kind and knowledgeable enough to discuss the options with me and help me reach a decision I can live with which is really what it’s all about. Thanks, too, to the members here who provided me with some great tips and information.

Best wishes to you as you continue your journey. When I was first diagnosed with OP, there was nothing that could be done about it, save weight-bearing exercise and vitamins/calcium, and to be extremely careful 😇. Here we are 15 years later, and we are able to have “new” bones. Who knew!?

Cheers!

REPLY
Please sign in or register to post a reply.