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Peritoneal Cancer: Anyone else?

Cancer | Last Active: May 23 1:48pm | Replies (88)

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@isadora2021

Congratulations on your recovery but also your amazing strength and attitude 🙏❣️. I was diagnosed with stage 4 appendix cancer in 2021. Had debulking surgery to remove a mass, my ovaries and a hysterectomy. 6 months chemo and immunotherapy followed then HIPEC + CRS + peritonectomy. I have been 2 years NED with quarterly scanning. I’ve been told I’m not cured.

You are absolutely right how hard the mental side of this illness, diagnosis and treatment are.

We are so lucky to have such better treatments and they keep improving. Prayers up for continued health! 🙏❣️

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Replies to "Congratulations on your recovery but also your amazing strength and attitude 🙏❣️. I was diagnosed with..."

Thank you for answering me. It does seem to help hearing other people who have gone through the same thing.

Yes, prayers to you and everyone with cancer.

@isadora2021 I hope this finds you still doing well. I was diagnosed with stage IV appendiceal adenocarcinoma March 2023. I had debulking surgery, appendix, gallbladder, 57 lymph nodes, section of liver, 1/3 peritoneal lining, and right hemicolectomy followed by HIPEC all in the same surgery. Operation took about 14 hours. I then had 12 rounds of FOLFOX which ended in Jan 2025. I was NED until Dec 2025. Although my follow up CT scans were clear, my CEA blood test results all of a sudden jumped up. There were consistently in the 3s during surgeries and chemo, but then 5.5, now 32 after my 3rd round of FOLFIRI!! This scares the heck out of me. In Dec I had a PET with 4 "hot spots" but oncologist and I were hoping the CEA and PET were false positives due to an open abdominal wound I'm fighting. We were hoping the inflammation from that wound was the culprit, but another PET in March and colonoscopy with positive biopsy for malignancy has me on round 3 of 12 of FOLFIRI. I'm looking for complimentary treatment (supplements or other) to go along with the current chemo regime to fight this escalation in the CEA numbers.
Are you still NED?