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Peritoneal Cancer: Anyone else?

Cancer | Last Active: 3 days ago | Replies (82)

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@isadora2021

It took my team almost 3 months after initial debulking surgery to decide my primary was appendiceal not ovarian. A very nervous wait. I then had 6 months of Folfiri + Avastin then HIPEC + Cytoreductive surgery + Peritonectomy. I’ve been NED for 2 years since HIPEC. Don’t be scared of HIPEC etc if you get a good surgeon who has done it a lot. While it was major invasive surgery it is very much worth it if you qualify. The pain management in hospital is great. My surgery was 12 hours including the 3 hours of hot chemo and I then spent about 5 days in ICU and 4 on the general ward. They got me moving the day they woke me up and that movement helps with recovery. All the best!

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Replies to "It took my team almost 3 months after initial debulking surgery to decide my primary was..."

Wow. Thank you for talking about this to me. Very scary, but you got through all right. It helps to hear this. I already had debulking surgery but it sounds like I might need it again BEFORE HIPEC. Will see when I actually talk to the doctors. Very hard waiting as you said. Best to you too!