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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I get plugs in my eyes every 3 months. They wear down & by the next of my next appt they are gone. I thought the plugs would be annoying. In reality I feel them at all.
I was diagnosed with Shogren's Syndrome last month via a inner lip biopsy. The surgeon said that he could tell when he made the initial incision that I have SS but he would send it to the lab as backup. The lab reports supported the surgeon.
It was a relief to get a diagnosis but frustrating because the treatment isn't a cure, just a handle of symptoms.
Replies to "I get plugs in my eyes every 3 months. They wear down & by the next..."
I have silicone plugs in one set of tear ducts and the other set has been permanently occluded. The silicone plugs do not wear out and can be removed at any time. These procedures have helped me a great deal for the dry eye portion of Sjögrens.
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I am scheduled to get a lip biopsy on October 20th because the only positive test results were the ANA and dry eyes. The other tests were negative. I was just prescribed Restasis but am reticent to begin as I've heard it can cause cancer. Was your lip biopsy painful and did you get general anesthesia for the procedure? Thank you.