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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I forgot about the terrible brain fig I suffer from its no joke its seriously bad to the point that my mother in law comes by frquently during the day to make sure I have put the towels in the oven and turned it on or something. Sorry to have to post all of my problems but im in serious need of some guidence, help and just some compassion would even be nice.
Replies to "I forgot about the terrible brain fig I suffer from its no joke its seriously bad..."
Yes my Rheumatologist is the one who diagnosed me and she just acts like its nothing and just try and control my dry mouth eyes and nose. She put me on methotrexate for my psoriatic arthritis and it has helped and has helped clear up my psoriasis. The wierd thing is that I am having all these liver and pancreous bile duct problems and none of my DR'S are putting 2+2 together but it seems from what im reading that my bile problems and pancreous problems could possibly be related to my sjogrens
@kkteel1, Thank you for your post. I would like to welcome you to Mayo Connect and say that we are pleased to have you join this discussion. I want to provide this link to information on Sjrogen's. I invite you to look at it since you have been recently diagnoses with this autoimmune condition. http://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/basics/definition/con-20020275
I cannot begin to imagine how frightening this whole situation must be for you. I am concerned that from what I am reading, there is no one person who is coordinating your medical care. With all of the symptoms that you are describing, it is no wonder that you are looking for some "guidance and support, and compassion".
I am not a medical person, but I am concerned about your mention of stents. That is the only part of your message that touches on my experience. How long ago were they inserted, and do you have any follow-up for that? I once needed stents in my bile ducts, but they slipped out of place, and were useless. Might be something to look into.
We are here to support you, and we do have good 'listening ears. But we are not able to provide any diagnosis.
Does anyone live with you or near you, to lookout for your comfort and needs?
Rosemary
Hello @kkteel1,
I'd like to add my welcome too; you don't have to be sorry at all! This is what Connect is all about: sharing, supporting and learning from one another's experiences.
@jewel8888 @oldkarl @marylou705 @sebley12 @briansr @frank1 @ccorrconro @mswanda @bettyjeanne do you have any insights for @kkteel1?
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@kkteel1, I'm sorry you're going through so much, and most of all, that you don't have an understanding doctor. Who diagnosed you? Do you have a rheumatologist? My rheumy is the only one who understands. If you don't have a doctor who is informed about Sjogren's, you might consider searching for one who does.