Hi, I've taken Tamoxofen, Letrozole & Anasrozole.
Have ER positive cancer so have to take them.
All these drugs have caused me very severe side effects.
Tamoxifen was the worse for me affecting my vision & caused yellowing, had constant migraines & felt totally disoriented, exhausted & very ill.
My Consultant stopped me taking them as suppected liver probs too. All symptoms stopped when NOT taking the Tamoxifen.
Next, given Anastrazole I had all menopause issues, C.fatugue was off the scales & lack of concentration & cognition & depression, I had to stop driving as I couldn't concentrate. I asked to stop as I felt awful, I had a 2 week break & ALL side effects went.
Next was put on Lansoprazole & this was dreadful too. All the same issues plus sickness, diarrhea & acid reflux. Again I stopped & side effects went.
I was told I have to be on these drugs for min of 5 years My consultant & doctors then said to try the original Brand of Letrozole ( Femora) as I had no choices, so far this has been better.
I'm still on these but I have very bad cognitive funtion, my brain feels like early stage dementia, I have still have poor concentration & extreme fatigue still, tend to bump in to things & have minor falls as my spacial awareness is bad with the extreme fatigue.
I'm very soon seeing another consultant for a 2nd opinion. I've no life on any of these drugs & want to know my % risk of recurrent cancer or spreaf if I stop taking these drugs.
Life's hard with cancer but these drugs make it far worse.
I want quality of life over quantity.
Is there anyone else who feels like me ???
I really feel these drugs are diminishing my brain cells in some way. I'm very worried.
There appears to be little research information available regarding this.
We need a better drug asap.