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I totally agree that it is impossible to pinpoint what the ALZ umbrella really covers. Each patient is different and nothing is predictable. I think that is why it is so maddening. Children grow up in a steady pattern of stages, but there doesn't seem to be that kind of steady progression in this disease. Since there is no winning outcome possible, I'm afraid it is a losing battle. All we can do is make the best of each day for ourselves and our loved one and call it "good enough." Thank you for your response.
Replies to "I totally agree that it is impossible to pinpoint what the ALZ umbrella really covers. Each..."
Very interesting discussions! I suspect the only way to make sense out of these various ALZ patient behaviors is to let an AI take a crack at finding a pattern. That would require Mayo to get/keep a digital record of these discussions. I hope someone from Mayo at least reads these.
AI is transforming pathlogoly (SP?) now. AI is good at finding patterns in information if it can get enough data. If only we can last another 20 years the tranformations will be huge. AI is ony a year and half old!
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At least we know we aren't the only ones fighting this battle. A little empathy for others in similar situations can be very comforting, thank you.