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Caregivers: Dementia | Last Active: Aug 6 2:23pm | Replies (42)
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I hope you had a well deserved break and regrouped for the next siege. My husband has ALZ; but he has the 4-5p yen to go out; also after dinner. He also has hallucinations of people in the house. The family has been researching his symptoms and vote for the diagnosis of Lewey Body. When I told the neurologist about his symptoms and our suspicion, he said that ALZ patients do the same thing and no it wasn't Lewy Body. He said that LB patients pace and just can't sit or relax. Could you enlighten me on the subject. In the big scheme, I guess it doesn't matter what the disease is called; awful either way.
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I know it seems like sidestepping the question, but there are so many behavioral variations that predicting the exact nature of the disease progression is impossible. We may categorize the cases according to some published or word of mouth information, but planning for the future is very challenging. We need to keep communicating and trying new strategies, but ultimately, it's a guessing game. Paradoxes and ironies are plentiful, while we caregivers keep trying to figure things out. Sometimes it just plain feels like a losing battle, sad to say.