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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 1 day ago | Replies (126)Comment receiving replies
Welcome, @archer72. The fear of recurrence is understandable. You're not alone in holding that fear sometimes top of mind and other times lurking in the background. I encourage you to start a new discussion about coping with the fear of bladder cancer recurrence.
Have you heard the term scanxiety?
- Scanxiety: How did you get through scanxiety https://connect.mayoclinic.org/discussion/scanxiety/
Makena, you mention persistent UTIs. How long ago did you stop BCG? Might that reduce the risk of UTIs? Will you start any other treatment?
Replies to "Welcome, @archer72. The fear of recurrence is understandable. You're not alone in holding that fear sometimes..."
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Thank you for your response. Unfortunately I got the UTI from the tech inserting the catheter for BCG and catheter fell out before he put BCG in. He reinserted the same catheter. 2 days later after BCG I got Proteus UTI. 2 rounds of antibiotics and an E Coli too. Now I’m clear of infection. Have started on DMsnnose 1 tsp a day and cranberry pills. So far so good. I just had a clear scan and clear cytology. So now I start the 3 month clock of feeling relief and then a week before next scan the fear takes hold. I feel I am living 3 months at a time. I don’t know if anyone else feels this way. The doctor wants me to try to continue with maintenance BCG in 6 months after my bladder settles down from the UTIs.