Connect
← Return to Sjogren’s Syndrome – Introduce yourself and meet others
Discussion
Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I have had Sjogrens for about 15 years. My kidney function is decreasing and now diagnosed with chronic kidney failure stage 3. Had a biopsy --directly due to the Sjogrens and now am on cellcept 1500 mg a day to keep my immune system from attacking my kidneys even more. Does anyone else have issues with this as well. Thanks
Replies to "I have had Sjogrens for about 15 years. My kidney function is decreasing and now diagnosed..."
Hey at one time my mom had thought I had this she works in rhemuotology but I never got tested.....just got diagnosed with ckd stage 3 little over a year ago and my left kidney I am wondering if maybe I do have this and it played a part or maybe I am crazy
Connect
Hi, @jlh658. Welcome to Connect. I do not have Sjogrens, nor do I have any experience with it. I do, however, take cellcept (mycophenolate mofetil). I take it with another immunosuppressant to keep my immune system from attacking my transplanted organs, liver and kidney. I have been taking it for almost 8 years. My labs are drawn routinely. And it is doing an exceptional job of protecting my transplanted organs. I have had no bothersome side effects from it. Your doctor should have advised you about directions for taking it, as well as any precautions that you need to be aware of. You may have a greater chance of getting infections, so wash your hands often and avoid being around people with infections, coughs, or flu.
Rosemary