CC can be horrible. Your experiences sound very distressing. I don’t think most people understand.
I have discussed my issue with my primary, endocrinologist, 2 neurologists and 3 gastroenterologists ( gastro all at Duke). I’ve tried 2 prescription meds which only worked s couple of days.
I suppose my CC was idiopathic, since the cause was undetermined. I have Type 1 diabetes, so my pancreas is pretty shot. It doesn’t really do what I need, however I had normal BMs until almost 2 years ago. Suddenly, i got zero BMs. Nothing would happen, unless I took Metamucil and Miralax. I posted around here about it until a few weeks ago.
I am doing really well, since starting mega doses of Vitamin B12. The deficiency was diagnosed last year, but I was undertreated. With proper treatment, I am going regularly without Metamucil or Miralax! It’s amazing! I don’t know why this is happening, but hope it continues. No idea how long I’ll be on this regimen.
Celia, I would add OMG, to distressing. 17 years of trial and errors, and errors and errors... and idiopathic treatment. Vitamin B-12, what qualifies as mega dose? How long? Pills or injections? My B-12 levels have always been on the high side. Did all the specialists you saw, give you any good advice? Any connection of CIC with idiopathic pancreas issues?