Thank you for this article.
Pre-diagnosis, I was telling my teenaged son that he needed to get off of the couch and work and/or go to post-secondary school. It was only when he finally got a diagnosis in the U.S. (we live in Canada) that we could rebuild our relationship. If only I had known what he was going through. He did try telling me but I just couldn’t understand. He probably couldn’t either. Thanks to Dr. Knight and the Mayo Clinic, he is learning to live a fulfilling life and we could not be more grateful. Pain management, diet and exercise are daily challenges, but with the progress being made we are hopeful. He has found a way to make money from home that he enjoys, which is much needed for his weekly physiotherapy and expensive organic and gluten free food.
Thanks for reading.