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Bonnie Dresser avatar

Moyamoya treatment

Brain & Nervous System | Last Active: Apr 29 4:18pm | Replies (17)

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Profile picture for aforcucci @aforcucci

Hi. I am 38 years old and was recently diagnosed with Moyamoya following a TIA. I was born in S. Korea and adopted as an infant and have no family medical history. I do not have a treatment plan yet but have my initial eval in Jacksonville on 10/04/24. Can you please share your treatment this far and what you experienced with your initial evaluation? Once I know more, I will gladly share my treatment information. Thank you.

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Replies to "Hi. I am 38 years old and was recently diagnosed with Moyamoya following a TIA. I..."

@aforcucci
Hello Andrew,
I'm curious if you are still on this site? If so, I may be able to offer some ideas to help. I was diagnosed with Primary Moyamoya disease at age 28 in 1998 and had surgery that saved my life. I would be happy to share more to help if you are still on this site.
I wish you the best and hope you find the medical care that you need!
Valerie.