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Peritoneal Cancer: Anyone else?
Cancer | Last Active: 3 days ago | Replies (82)Comment receiving replies
At 72 (MPLS,MN) I thought I had ovarian cancer but at surgery it turned out to be Low-grade appendiceal mucinous neoplasm (LAMN). I had my spleen removed & appendix. Now I see in my file peritoneal cancer. With it not being Ovarian my GYN Oncologist is out of the picture and I have an appt with a surgeon & Gastro oncologist. I am sacred to death. Have to wait a week to see what is going on. NOT ready for more stress and anxiety. I suspect I will have HIPEC but that also sounds awful. Has anyone had this?
thank-you & God Bless.
Replies to "At 72 (MPLS,MN) I thought I had ovarian cancer but at surgery it turned out to..."
It took my team almost 3 months after initial debulking surgery to decide my primary was appendiceal not ovarian. A very nervous wait. I then had 6 months of Folfiri + Avastin then HIPEC + Cytoreductive surgery + Peritonectomy. I’ve been NED for 2 years since HIPEC. Don’t be scared of HIPEC etc if you get a good surgeon who has done it a lot. While it was major invasive surgery it is very much worth it if you qualify. The pain management in hospital is great. My surgery was 12 hours including the 3 hours of hot chemo and I then spent about 5 days in ICU and 4 on the general ward. They got me moving the day they woke me up and that movement helps with recovery. All the best!
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@livedinrochester. Go ahead and contact your previous GYN oncologist. I will save you lots of time and stress. Plus, if the doctor made a mistake, your phone call will be a wake-up lesson for him. Hopefully, it will prompt them to be extra careful next time. Was this doctor involved in your surgery at all?
As for you, you’ve already started on the way to self-advocacy. Good job!
What does HIPEC stand for?