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Question: What testing have you had for neuropathy?

Posted by bettyg81pain @bettyg81pain, Jul 8 9:14am

I just got a call from the nurse in my neurologist office that wants me to come in for a more extensive testing-first one they did just said that I did have severe neuropathy-next test showed that it was an auto-immune problem and they needed to do another test to see if they can correct the problem or if they needed to refer me to another type of doctor (forget what type she said)-have all of you gone through this same testing?
At least they are trying to find a solution rather than saying tough luck.

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Debbie | @dbeshears1 | Jul 22 1:53pm
In reply to @ray666 "Good morning, Debbie That's what it feels like, doesn't it? Finding yourself sitting in the dust..." + (show)
@ray666

Good morning, Debbie

That's what it feels like, doesn't it? Finding yourself sitting in the dust and knowing if you've to have a chance of living a wholehearted life, you've got to climb back on your horse.

That's been the pattern of my life these past few years since getting my PM diagnosis, a series of ups and downs. My physical ups and downs have not been as challenging as my emotional ups and downs.

To this day, I need to begin each day with a little poke to the spirit: 'Come on, Ray, let's rally! Things could be a lot worse. So, come on, Ray, let's get this day underway!'

That's me, Debbie, climbing back on my imaginary horse. 🙂

Ray

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I thought about you when we went to meet my childhood best friend for lunch, who happened to be passing through my area. I recall a couple of years ago when you were hesitant going out to coffee with friends. The last time I saw her a few years back we met at a country themed club and all took turns on a mechanical bull. Sometimes I feel like that's what we're doing, but without the mat underneath us 🙂

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Ray Kemble | @ray666 | Jul 22 4:43pm
In reply to @dbeshears1 "I thought about you when we went to meet my childhood best friend for lunch, who..." + (show)
@dbeshears1

I thought about you when we went to meet my childhood best friend for lunch, who happened to be passing through my area. I recall a couple of years ago when you were hesitant going out to coffee with friends. The last time I saw her a few years back we met at a country themed club and all took turns on a mechanical bull. Sometimes I feel like that's what we're doing, but without the mat underneath us 🙂

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Funny that you should have remembered my story of being hesitant to meet a friend for coffee all because I'd become so unstable on my feet; perhaps most hesitant because I'd begun to use a cane and I didn't want to have my friend see me as someone who needed to use a cane. Today, I'm ashamed to admit I'd felt that way. In all the months since, during which I've learned to live with PN without it becoming my identity, I have come to realize that my friends, for the most part, don't even 'see' my cane. If they do my wielding a cane, they tacitly approve of my doing it and not being so self-conscious that I pass up an opportunity for us to meet for coffee. What funny creatures we are! 🙂

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artemis1886 | @artemis1886 | Jul 26 10:29am
In reply to @celia16 "I see! Yes, I get it. I made a point to enjoy a glass of Pinot..." + (show)
@celia16

I see! Yes, I get it. I made a point to enjoy a glass of Pinot Grigio tonight while dancing to Into The Mystic while preparing dinner! Very enjoyable and I hope to retain the ability to do it for a while yet. I did give up sweets for the most part to help with my weight loss and fitness journey (and manage type I diabetes). That was a wise decision though.

Sure hope your sepsis is better and that you’ve discovered a substitute pleasure!

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EMG/nerve conduction test
Small fiber neuropathy is
Two to three skin biopsies
One doctor did three skin biopsies another did two biopsies up to the doctor
Autonomic Neuropathy
two one month holter monitor test a year a part/ tilt table test
Diagnosis:
Mine is autoimmune RA/Lupus
Severe axonal sensorimotor peripheral polyneuropathy
Small fiber mixes into the autonomic neuropathy
Cardiac autonomic neuropathy (CAN)
Bladder problems
Kidney problems
Tremors
Balance problems/falling
People do not think about the autonomic nervous system becoming involved but they have nerves too

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