← Return to Hi! Does anyone been diagnosed with gastroparesis. 4shaylyn

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@dancing1

Can I please ask how they finally decided you had it. Thats what we are thinking my issues are. I’m loosing with also and so exhausted going out is also extremely difficult for me also.

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Replies to "Can I please ask how they finally decided you had it. Thats what we are thinking..."

Hi @teeposey928 from Shaylyn4.I had an atonic bowel since I was a toddler but no official diagnosis until my mid thirties. That was diagnosed by my taking citrate of magnesium and dulcolax so I would be fairly clean.Then I swallowed a bunch of radio isotopes ( little bits). Then every day I had an x-ray to monitor them. I couldn’t take anything to help me go. I lasted the first time for 12 days and the second for 14 days. Some of the pellets were scattered about and only about 1/3 were in my sigmoid.
My mom had been giving me mineral oil and castor oil( which did nothing) so when I cried with pain she gave me an enema. By my late twenties I had tried every laxative and softener OTC. By then I had wicked GERD and had taken all those EPC meds to help. I finally had a really good talk with my GI and I started on scripts for the GERD and atonic bowel. Now I take Nexium 40 mg. twice/ day. Not much really helped the bowel problem. I would get partially obstructed, go to the ER and they would start an IV put meds in it and give me 2 different kinds of enemas. I would go. I could have spent the night but opted to go home.Around 2012 I began with more bowel problems, nausea and wicked abdominal pain and once with pancreatitis. Was in the hospital 13 days and almost died from complications that were not noticed by the nurses.From then I was in the hospital so many times I forget. I had many ERCP and pancreatitis. X-rays,MRI’s CT didn’t show anything. I was fortunate to have a good GI because he believed me and listened to me even when the ER docs said I was Drug Seeking. He did 2 gastric empty tests and then a special radioactive pellet put in scrambled eggs and then had more x-rays and all demonstrated the same condition—- gastroparesis and severe. I had lost a lot of wgt. Boston docs wanted a stomach tube - - no way - I had TPN in the hospital 3 times and finally in 2017 I was in a nursing home for one mo. on TPN. When I went home I was back to my so call normal wgt. I still have flare-ups usually caused by stress or trying something new to eat. I have not been in a restaurant or eaten their food since 2014. No fresh fruits or vegetables,very little fiber and juices. Recently I’ve tried roasted chicken mashed potatoes and green beans. Hopefully native tomatoes, low fat cheese, chicken and lettuce on Italian bread. Lucky me I have a new GI ( young) the other retired. and he’s even better than the other one. He’s trying to get me off my pain meds ( using amitripyline.( lowest dose possible) and CBD. If I have a question or concern I call in the morning and he will call me before the end of the day and many times from home or on a Sat. or Sun.. I hope I answered your questions. I tend to ramble when someone is asking and is interested ( so many people don’t want to hear about it)!,