I'm more partial to Actemra (tocilizumab) but Kevzara would likely be equally as effective for me.
I started Actemra on January 1st, 2019. I will never forget this day after 12 years on prednisone for refractory PMR. I was off prednisone one year later. I would have been off prednisone sooner except for having adrenal insufficiency as a result of long term Prednisone use.
Prednisone was okay for the first two years. After a couple of years, I was having classic signs of steroid toxicity. I would encourage people to explore other options to Prednisone after a year or two.
IL-6 inhibition wasn't an option for me 15 years ago. I'm very excited that this option currently exists. However, I'm getting somewhat nervous about being on Actemra for more than 5 years.
Since Prednisone was discontinued, at least 5 more medications were discontinued that were being used to treat Prednisone side effects. No other additional medications have been added for Actemra side effects.
Thanks for all your contributions to this support group. I wish you the best in finally riding yourself of PMR.