← Return to Sjogren’s Syndrome – Introduce yourself and meet others

Comment receiving replies

Sorry to hear that.
Sjogren’s is a big topic.
How were you diagnosed, as in what were the criteria, positive ANA, positive anti-Ro, salivary gland biopsy etc?
What treatment(s) have you been given, if any?
Do you have any commonly co-occurring autoimmune illnesses such as Hashimoto’s Thyroiditis?

Overview might be of help:

Jump to this post

Replies to "Sorry to hear that. Sjogren's is a big topic. How were you diagnosed, as in what..."

I have just been diagnosed with primary Sjogren's via a lip biopsy. I was Ro and La negative. I have very dry eyes which I am managing reasonably well with eyedrops and dryness down below which I am using topical oestrogen for, I have been started on Pilocarpine (Salagen) 2-3 times a day. I was led to believe that I would not get any systemic symptoms but I do have some symptoms of fatgiue – not crippling but enough to make my working life difficult, I am 53 years old and have been told the fatigue is just part of the menopause but I am not convinced. What are the best ways to help with the fatigue or is it just a case of accepting it and pacing yourself? Any advice would be very much appreciated.

I was diagnosed by lip biopsy and I have a dry mouth and dry eyes. I use eyedrops regularly and also take Pilocarpine (Salagen) to help my salivary glands be more productive. I have no other auto immune diseases. I was diagnosed a year ago but have had dryness symptoms for many years. I was Ro and La negative on a blood test so my rheumatologist is hopeful that I will not develop the joint problems and tiredness.

Jean,. Good news for you. I have had RA for at least 10 yrs. The drugs are hard on me. I try to get thru the episodes with only Tramadol. Very very light drug. Recently my ocologist is finding something suspicious in my blood. He is not ruling out multiple Myeloma. I am doing one more blood test which somehow was damaged. I truthfully believe I do not have Myeloma. I suspect what you have. I fogot the name of disease. We can survive that. I am so sick of taking pills and being so tired and low energy. God Bless. Lee

I have Hashi's. Six years ago, I had major autoimmune issues. As you may know not everyone with Sjorgren's shows positive blood results. I have other related issues such as Renaulds. I have had optic nueritis twice, rare with SS.

  Request Appointment