@debbiewave Your husband’s situation sounds so difficult for both of you. Is he currently being seen by any doctor? If you live in the Mid- west, there are several options.
this first link is about the numerous hospitals that partner with Mayo.
https://www.mayoclinichealthsystem.org/?
Other options to try are comprehensive medical centers and university teaching hospitals. You can call the hospitals directly and ask for what you need. That’s what my husband had to do. When I was at my worst and getting no help from our local hospital, my husband called the university hospital in Denver and asked for an appointment. I didn’t make that appointment, though, because I got very sick and ended up in ER. Then our hospital called the university hospital and asked for help. They told the ER how to treat me! And that’s how I came to still be here and telling you what to try!
What do you think you’ll say when you make the calls?