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MAC & Bronchiectasis | Last Active: Aug 8 4:36pm | Replies (32)
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Replies to "Your story sounds so similar to mine. I also have a small hiatal hernia and even..."
You may already know these things but I will share what I was told while at NJH in Denver.
Follow all guidelines for acid reflux, meaning no food or water three hours before bed.
No water in the night if you wake up. Sleep with the head of the bed elevated....blocks or wedge pillow or both. Sleep on your left side.
With having several health problems it does become complicated for the doctors and ourselves. I think at that point we work our way to finding out what works for us. For me I questioned why I had to see the local Pulmonologist every six months when all that they now could do was help me with antibiotics if I had an exacerbation and as well since I go to Tyler to see Dr. McShane as my primary BE doctor. Overall from the start the local pulmonologist truly was not much help. He agreed and said to please call him if I needed him, like if I feel I am having an exacerbation. This site, the internet and NJH were and are the best sources for how to handle and what to do with BE and the hiatal hernia (acid reflux). I use to wake up at night and the morning with a burning tongue and did think "acid." It was a couple of years later that with going to and learning from NJH (NJH leans towards believing acid reflux plays a role with BE) and following the acid reflux diet that I no longer wake up with a burning tongue. My problem is more silent reflux because I have not/never, as yet, have/had heartburn, a burning in the esophagus and the other typical symptoms of acid reflux during the day. With the constant feeling of thick mucus sitting in my throat, I chew gum, not the best thing, but it seems to help with the mucus caused by the hiatal hernia. I decided to try gum chewing before I knew that chewing gum is suggested for trying to control symptoms with acid reflux. It's not a total help, but does help some. The constant mucus/sputum is truly my main problem and the cause of a limiting lifestyle with it being worse immediately after eating. Not a pleasant thing for others to be around and watching a person do what they need to do...bring the mucus/sputum up and out and into a cup. So, I have many talks with myself and do try to be positive. So far my talks have helped...so far. So glad we are all here for each other.