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PN and handwriting …

Neuropathy | Last Active: Jul 29 1:36pm | Replies (54)

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@cheyne

Hi Ray,
I find that the messages from the brain are getting lost or confused on their journey to which ever particular muscle is required to do something normally. So far it only tickles the heart, occasionally aside from the permanent organ dissruption.
Incidentally we are a day ahead of you, Friday already.
After Campylobacta I had a severe bout of vertigo where I couldn't roll over in bed let alone get up. I have managed to deal with it and find as long as I concentrate on what I'm doing and try not to move the head too much I can ignore the vertigo. Everytime I forget myself I have a sudden urge to kiss the ground!
I consider myself as lucky with little or no pain but then I have been sucking up pain for years without pain killers. Possibly addicted!
I have trialed every medication known for blood pressure and reacted badly. I'm now on the last one which has a reputation for killing kidneys. Curiously it hasn't touched my kidneys yet and the body has not reacted. Then again I'm on a lowish dose and it is not doing anything for the blood pressure. I persist with it as it is stopping the severe migraines I get with my 210/120 blood pressure. I know I can sustain 240/140 but prefer not to.
I'm unable to stomach, literally, medications and have a theory the ANS has something to do with it. Give me meds via injection and I'm relatively OK. I remember as a child not having too much trouble with the everyday meds although I was never allowed the community vaccinations. Since the kidneys are not too good I have been taking vitamin D3 and latterly B12 which is supposed to help with the building of nerve endings besides keeping one alive. Since 2018 I have never had the flu or a cold despite my wife bringing them home to share!
At the end of the day as long as I'm able to walk, talk and cause trouble I seem to be OK. My only physical restraint is the ANS when it decides to do something different than what I want or the very rarely occasion I'm momentarily paralised from the waist down.
Thursday was a relatively good day.
Cheers

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Replies to "Hi Ray, I find that the messages from the brain are getting lost or confused on..."

Hello!

I’d forgotten that you’re a day ahead of those of us on the other side of the Pacific. I’m surprised I hadn’t remembered because I have a correspondent in Perth with whom I’m exchanging messages every three or four days.

I, too, have tried a medley of blood pressure medications. Today, I take only a low-dose Losartan (25 mg), once daily. Until recently, I was taking both a higher dose Losartan (50 mg, also 100 mg), once daily; also, Amlodipine (spelling?). Amlodipine, it seems, comes with foot and leg swelling as an undesirable side effect; when I complained to my primary doctor about such swelling, she took me off the Amlodipine. That happened right about the time I got my sepsis infection. The various medications I was given to fight that infection wreaked havoc with my blood pressure. Now that I’m getting over the infection, I’m waiting to see if my low-dose Losartan will settle my blood pressure right about where it should be.

As far as supplements go, I take 2000 units of D3 daily, as well as a ‘medicinal food’ called EB-N5.
EB-N5 (available in the U.S. by prescription only) is a power packet of various vitamins, including the non-toxic B6 pyridoxal phosphate, which may aid (if I’m lucky) my neuropathy.

Cheers!
Ray