← Return to Oxaliplatin is no walk in the park, advice for CAPOX regimen?

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@kjm246

I hope your doctor will listen to you and closely monitor your side effects. I was told by my oncologist that Capox was the “easier” chemo tx, but I had all the symptoms - neuropathy, cold sensitivity, severe muscle contractions in jaw, hands and legs, dizziness, difficulty focusing eyes, and brain fog along with more typical chemo effects of extreme fatigue, nausea and constant diarrhea right away after the first treatment. I hadn’t heard of all the side effects before starting treatment but tried to track them so my oncologist would at least acknowledge that side effects can vary widely in different people and consider a dose adjustment if needed. Sending you lots of positive energy and support.

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Replies to "I hope your doctor will listen to you and closely monitor your side effects. I was..."

@kjm246 You are so right. So important to let the oncology team know promptly.

I have heard first hand numerous accounts from others using oxaliplatin who needed adjustment or who couldn’t tolerate it at all and needed it dropped. Hard to foreshadow who will and who will not have trouble with it, including what lingering neuropathy there may or may not be after treatment.

I don’t think most oncology teams prepare patients well enough around oxaliplatin. I was fortunate mine did. I was able to choose and chose not to go that route.