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PN and handwriting …

Neuropathy | Last Active: Jul 29 1:36pm | Replies (54)

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@ray666

Good morning, cheyne

My own blood pressure has been something of a teeter-totter these past few years, despite the variety of hypertension medication my primary has suggested I try. So far, however, even though my numbers go up and down, I’ve had no ill effects.

Yesterday, I said something that made light of my worsening handwriting and my PN, how no one with whom I shared the stage ever gave two figs for my poor penmanship. That may have been true, but I never meant to imply that my neuropathy wasn’t a problem for me professionally. It was my neuropathy, not my getting older, that made me decide to give up acting. In my last play, I realized I was paying far more attention to not falling down than I was to my lines. Finally, I said to myself, ‘This is nutsy!’ and gave up performing, thinking at first it would only be short-term, until I got my balance ‘fixed.’ Learning – and then accepting – that my PN was incurable was a huge uh-oh—the hugest.

I’d best send and get cleaned up for today’s therapy sessions. I’ve got both kinds today: physical therapy and occupational therapy, one right after the other.

Have a grand Thursday.
Cheers!
Ray

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Replies to "Good morning, cheyne My own blood pressure has been something of a teeter-totter these past few..."

Hi Ray,
I find that the messages from the brain are getting lost or confused on their journey to which ever particular muscle is required to do something normally. So far it only tickles the heart, occasionally aside from the permanent organ dissruption.
Incidentally we are a day ahead of you, Friday already.
After Campylobacta I had a severe bout of vertigo where I couldn't roll over in bed let alone get up. I have managed to deal with it and find as long as I concentrate on what I'm doing and try not to move the head too much I can ignore the vertigo. Everytime I forget myself I have a sudden urge to kiss the ground!
I consider myself as lucky with little or no pain but then I have been sucking up pain for years without pain killers. Possibly addicted!
I have trialed every medication known for blood pressure and reacted badly. I'm now on the last one which has a reputation for killing kidneys. Curiously it hasn't touched my kidneys yet and the body has not reacted. Then again I'm on a lowish dose and it is not doing anything for the blood pressure. I persist with it as it is stopping the severe migraines I get with my 210/120 blood pressure. I know I can sustain 240/140 but prefer not to.
I'm unable to stomach, literally, medications and have a theory the ANS has something to do with it. Give me meds via injection and I'm relatively OK. I remember as a child not having too much trouble with the everyday meds although I was never allowed the community vaccinations. Since the kidneys are not too good I have been taking vitamin D3 and latterly B12 which is supposed to help with the building of nerve endings besides keeping one alive. Since 2018 I have never had the flu or a cold despite my wife bringing them home to share!
At the end of the day as long as I'm able to walk, talk and cause trouble I seem to be OK. My only physical restraint is the ANS when it decides to do something different than what I want or the very rarely occasion I'm momentarily paralised from the waist down.
Thursday was a relatively good day.
Cheers