This post caught my eye due to the reference to mononucleosis. I was diagnosed with mono in October of 2019, and I have been sick ever since, so I’m closing in on 5 years. I have spent thousands of dollars and seen every practitioner you can imagine with a minimum of results. Life has been miserable to say the least. Depression, loss of job, limited ability to function, extreme fatigue, dizziness, nausea, burning eye pain, headaches, insomnia, and on and on. I finally went to an immunologist who is actually trying to help me, which no one else did. He diagnosed me with Myoadenylate Deaminase Deficiency, Sjogren’s Syndrome, Anti-phospholipid antibody syndrome, and Raynaud’s Disease. Overwhelming, to say the least. I am now taking a series of supplements that seem to be doing me some good, and I have improved by about 50%. I still have to nap every day, I cannot drive long distances, and any sort of physical or emotional stress is beyond my ability to cope. I will be bedridden for a couple days. BUT, I now have hope. I haven’t given up.
I’m hoping this post may help someone else dealing with this misery and a changed life. The answers are out there, and I will not stop looking and trying different things, so please don’t give up. You are not alone.