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DiscussionNET on liver: Question about treatments when no symptoms
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 11:54am | Replies (28)Comment receiving replies
Replies to "I have two carcinoid tumors on my liver and they have been there for many years...."
I appreciate your sharing your diagnosis and treatment. I have one doctor recommending octreotide and one saying just monitor and do regular scans. I thought octreotide purpose was to help with symptoms. At this point I do not have any symptoms. What is your understanding of the value of octreotide in a no symptom situation? How often do you have scans? Have your tumors grown over the years? Thanks for posting.
Thank you and we feel the same way. Why not monitor at this point. She feels fine and strong. The oncologist got mad yesterday when i suggest just monitoring it.
She had the doctate scan and they cannot find a tumor anywhere else. The biopsy showed k67 p rate of 5%.
She did have a carciniod tumor on lung resection 10 years ago. I wonder if maybe this mastis from that and was just discovered? Her tumor on liver is 4.5 cm but there is only one on liver. They are wanting to do lutathera but we want to monitor.