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@jedtad

Before radical prostatectomy he was diagnosed as stage 3b. They said it was not in lymph. Then after surgery they found it was in lymph on both sides of prostate.. I think 7 nodes cancerous. Does this make it stage 4? We have never been told and I did not want to ask at the time. 3b just sounded so much better. They proceeded with radiation and ADT. We had to switch doctors several times for different reasons all out of our control. Each one had a different opinion so he has been on several different regimens, I lost track. All I know is he has been on horomone therapy for two years (shots) testosterone had been 0 for all of that time. It is still very low so they do not understand why his psa rose so quickly. PET scan Aug 5th.

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Replies to "Before radical prostatectomy he was diagnosed as stage 3b. They said it was not in lymph...."

Thank you for your thoughtful reply. Sorry for all that you’re going through. As I understand it from a patient’s perspective if lymph node involvement is limited to the pelvic lymph nodes he still could be stage 3B N7. If lymph nodes are involved that are outside the pelvic region then it could be stage 4.

Just my opinion, but I think that continuation of care is critical when aggressive cancers are involved like what I have and what your husband has. Being treated like a hot potato is not beneficial to outcome.

Just my opinion here, but I think it’s critical that your husband received treatment at a center of excellence not just the local community hospital. Following is a link that lists centers of excellence for prostate cancer treatment. If you’re unhappy with the care that he’s receiving, I strongly suggest that you consider seeking care for him at the closest center of excellence near you. Might be time to get a second opinion!

Good luck on your journey together. Reach out to me privately if I can help answer any questions for you from my experience.

I have found PCRI.org has videos that contain invaluable information. I think of them as they frequently mention centers of excellence. They have a helpline noted in most of their videos where you can call for more information on closest locations