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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
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@twinkie23

I just finished my second IVIG treatment for multi-symptom SLE and small fiber neuropathy. I am having difficulty with the side effects , mainly debilitating migraine (6days), nausea and weakness. I have not had any positive results yet but understand it can take several months for any relief.

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Replies to "I just finished my second IVIG treatment for multi-symptom SLE and small fiber neuropathy. I am..."
gbspgh309 | @gbspgh309 | Jul 28 6:53pm

Don’t forget that you can regulate the drip rate. I insist on 110 for my drip rate. It may take longer, but I have fewer migraines. I remind the nurses every time because they might miss it on my chart. I know someone thatndoes the IVIG over 2 days. Good luck!

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sb4ca | @sb4ca | Aug 20 12:31pm

You might want to make sure you are infusing slowly enough. These symptoms are common with faster infusion rates. It is especially important at the beginning to infuse at a slow rate.

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