Connect
← Return to CLIPPERS: Looking to connect with others
Discussion
CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)Comment receiving replies
Sue,
I had my Pet-CT and two MRIs at NYU Langone on Monday. The results are in my hands before any word from the doctor, and they look quite good, with no abnormalities found and little difference from earlier procedure results. So this appears good from the perspective of confirming I am in a stable period and condition. At the same time, it keeps what's causing my symptoms unknown. I am of course looking forward to what my doctor has to say and will share this with you, as well as others who may find it helpful.
Looked at your profile, Sue, for the first time and see that we are similarly happily married, grandchildren-ed and each have a cat! And each into emphasizing positivism. I am reluctant to fill out my own profile, having spent many years as a privacy consultant, although I do wonder, at my age, and in this context, if it makes any difference!
Anyhow, thinking of you and hoping the best for you.
Don
Replies to "Sue, I had my Pet-CT and two MRIs at NYU Langone on Monday. The results are..."
To add to this, I had an appointment with my neurologist today and she said she just recently discussed the PET-CT and MRI results with the NYU Langone doctor who arranged them. Both are in agreement that I seem to have entered a stable period in which a daily dose of 20mg Prednisone is serving me well. They are both inclined to keep me on this, given my current condition, my age, my medical history, etc, but will try something else if new symptoms develop or the stability goes away. I am quite content with this, although it does mean accepting that what has caused my demyelination disease remains a mystery.
Don
Connect
@donnyboy
Hi Don,
Thank you for sharing your recent tests at NYU Langone. I am happy that you are stable. It is always a good feeling when you receive that report. However, still having no answers is unsettling.
It is so nice to have similarities and being able to share. I too was reluctant to fill out my profile, but I decided to.
Again, so glad your tests results were good!
Thinking of you and hoping you have a good day!
Sue