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NTM/MAC/MAI: We must advocate for ourselves

MAC & Bronchiectasis | Last Active: Sep 17, 2022 | Replies (145)

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@heathert

Hi everyone, below is the list of labs that we can write to regarding getting MAC/MAI on their testing lists, all the labs are doing research that could involve testing it on MAC/MAI for a cure, some to do with emzymes and others antibiotics etc They seem to be testing on lots of bacteria but never MAC so we need to let them know how this is now a bigger problem than TB and is growing by 8% a year and that there is no cure as of yet, it generally returns even if it does regress for a period of time. Lets be proactive, we can get this a cure! Please comment who you have written to in the reply below, so that we are not bombarding the same company too many times. GOOD LUCK to us all in finding a cure for this, we can do this!!!!!!!!!!!! I will post an article that I got alot of the lab manes from in my next post, its very interesting.

John Hopkins Research institute for Biomedical Science:
Edward D Millar Research building
733 north Broadway
Baltimore, MD 1205-1832
Attn Stephan Desiderio ph 410-955-3383

Merck + Co :
2000 Galloping Hill R
Kenilworth
NJ 07033
USA
Attn Kenneth Frazier Ph: 908-740-4000

Paratek Pharmaceuticals
1000 1st ave #400
king of Prussia
PA 19406
usa
Attn Evan Loh Ph:617-807-6600

Tetraphase Phamaceuticals
480 Arsenal St
#3 watertown
MA 02472
USA
Ph: 617-715-3600

Melinta Therapeutics
6663, 300 George st
#301 New Haven ct, 06511
USA
attn Eugene Sun

Entasis Therapeutics
gateway park biohub
35 gatehouse Dr
Waltham
MA02451
USA
Ph 1781-810-0120

Spreo Therapeutics
675 Massachusetts Ave
Cambridge
MA02139
USA
attn Ankit Mahaderia

Arsanis
890 Winter st,
suite 230
Waltham
MA 0241-1472
Ph 1 781 819 5704
email info@arsanis.com

Achogen
7000 shoreline ct #371
south SanFfrancisco
CA 94080
USA
Attn Kennith Hillan
Ph 1 650 800 3636

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Replies to "Hi everyone, below is the list of labs that we can write to regarding getting MAC/MAI..."

I will call all next week - I hope others do as well as they get some time!

I will email any I can but living in NZ makes it a little more difficult to call, I also have more to get addresses for so will sort that also.

Hi @boomerexpert please let us know how you get on, I have just emailed one in the UK called auspherix, will let you know if I hear back from any of them also.