← Return to Lumbar Spinal Fusion, Post-Op. Should I have these symptoms?

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@sbtheplumber1

@wandagoode I went thru the L4-S1April 2023. I had surgery because when I bent over I would about fall trying to get back up. When the surgeon got in there he found that L5 was loose , so he had to go to S1 (worst mistake ever I was already fused at L3-L4) at 3 weeks I had someone come up behind me while I was seated and twist me. The following week the nurse practitioner said it might be a set back but should be ok and I could start twisting, bending, lifting up to 30 lbs. I went home that night and after my shower decided to bend over and dry my lower legs (big mistake) there was a burning across my back that never improved. Still using a cane and sometimes Walker or scooter the surgeon released me to go back to work as a pipefitter at 4-1/2 months said everything’s healed . Luckily I met my new pcp that week and she kept me off the other 6 weeks then I was 8 months of no income applying for disability. My 1 year follow up the surgeon said everything is solid , no scar tissue , no pinched nerves , I can go play football . He’s on the second floor I can’t walk 1/4 of the distance so my wife took me up in a wheelchair I was seen several times in between because of the pain , all he would say is why did you have this test done. Last 4 visits never got me out of the wheelchair to look at my back. I still can rub my tailbone and send pain straight to the testicle I told him and he said no it has nothing to do with the back, I was having bladder and bowel issues so I asked about the Cauda Equine nerve since my inner thigh was so tender and painful and he said no so I had an epidural (with no relief) . He referred me for a pain stimulator luckily the pain doctor agreed there was something still wrong and sent me to see another neurosurgeon and I seen another one when I was in the hospital ( all they said is they wouldn’t recommend no other surgery) I was sent to surgeon #4 who said it’s my hip hip surgeon done a test and said the hips fine it’s your back. So back to the Pain doctor once again he said there’s still something wrong and recommended Mayo Clinic which I was denied. Back to pain doctor for an EMG nothings wrong with the back, I have mild neuropathy and pelvic issues which unfortunately pelvic therapy ended that week. I’m going the 30th to see my Neurologist so hopefully he can give me some answers. I had to stop physical therapy and water therapy it was hurting too bad, everytime I squat in the pool and do pelvic tilts my back popped, then I’ve been going and just walking in the water and had to stop the pressure of the water hurt. I still occasionally have trouble at church and had to start setting in the entry way where it’s concrete floor because the vibration of the Bass on the wood floor triggered the nerves. Sorry for such a long post hopefully it helps someone watch out for something since it never helped me!

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Replies to "@wandagoode I went thru the L4-S1April 2023. I had surgery because when I bent over I..."

@wandagoode I forgot to mention the MRI shows possible pseudo arthrosis and pinched nerve at L3

Which location did you try for Mayo Clinic? Were your test reports and MRI's or CT's sent to them for review? I would try again and ask for an appointment with a physiatrist. A physiatrist is the doctor who would refer you to the appropriate specialist. The physiatrist may also order more tests. That can often be accomplished within the days/week you are at the Clinic. Try to make sure you can stay into the next week if you are invited to visit for an evaluation. All 3 of my surgeries were done at Mayo Clinic in Rochester. I also had a surgeon (knee replacement) who wouldn't admit that the surgery was a failure. I advocated for myself and had to have the implant replaced 1 1/2 years later.

Your instructions were different than mine, I had my second fusion last July, 2023; both were done at Mayo Jacksonville. First time from L4-5, then the last time extending down to L5-S1.
Both times (different surgeons) I was told no bending lifting or twisting for 3 months, no PT until after 3 months, and only walking as much as I was able.
I’m not sure but I think PT may have been helpful if I started earlier.
I would try to get into Mayo again if I was you, I was denied three times before they took my case.
As for results- I am much stronger in the area of my fusion now. I can bend and move around for a longer period of time. I just came from shopping, where I walked around for an hour in the store, it was great to be able to do that!
But I still suffer from pain, not always the same area but the bottom of my spine when I lie down in the evening is so bad, I want to just curl up and cry with pain sometimes. I use the full back heating pad every night, it wraps from my neck down to my hips and helps a great deal.
Don’t beat yourself up, it’s a difficult surgery to recover from.
Now I’m trying to get help for my neck, hoping you can get your issues resolved!

Wow I will pray for you, I am sorry you are suffering so much, it’s not fair.
Had a lamenectomy 2 weeks ago and have hip and pelvic
Issues but I was told to give it time.
This is nothing compared to fusion. Good luck and May god bless you.
Tony