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Shaylyn4, yes my GI said it was ok to use lots of miralax. I MUST use the large doses of miralax, whether it's good/right/wrong/terrible. A little clarification on this: I don't think it's totally good to take these doses forever. My GI quit taking my calls or emails, after I had a partial small bowel obstruction, via ambulance and ER& ICU...3 months after he disregarded 2 X-rays/radiologists recommendations that a partial obstruction was most likely forming. I don't have any other options, at this point. I must keep my poop between easy slush and diarrhea, since I have no ability to get it out normally. After I have my parathyroid, 3 1/2 of 4 glands, I'm praying SO HARD that in time my CIC will get better. HPTH and elevated calcium levels wreak havoc on the smooth muscles of the body, ie the muscles needed by the intestinal system to move the poop out.
Back to you, you wrote that 500mg of magnesium carbonate ended you in the hospital with the horrific nasal gastric tube(I have had it once too, OMG, never again can I take this ). Just so I understand the details. Cuz I take 4-6 tablets of 500mg magnesium carbonate, most days. It helps CIC and sleep, both just a bit. I guess it would be accurate to say that "this problem is the shits💩" Shelley
Replies to "Shaylyn4, yes my GI said it was ok to use lots of miralax. I MUST use..."
Shelley,
When is your surgery?
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Hi Shelley. I have the opposite issue of you. I have hypothyroidism and have been taking Synthoid since my early 30’s. I have actually taken Citrate of Magnesium and that is a fast response but because of my EPI and Gastroparesis my GI is against that. I keep hearing about GI docs.that seem heartless or just don’t care because people have so many problems. I have a young GI now after the one I had for 40 years retired and he is open to whatever I think will help as long as it doesn’t affect me in other ways. I have really big problems having a colonoscopy so he did a much easier prep for a sigmoidoscopy which I tolerated and showed I had thickening of my bowel. He watches me carefully since Creon ( for my EPI ) can cause thickening of the bowel and obstruction ( which like you I had ) I now also have a new PCP internist who specializes in gerontology so he understands all the old age problems we have. I can call my GI in the morning and he will get back to me the same day even if he calls from home which he does frequently.
A support group is nice. You can talk to people with same problems and they don’t thick all you’re doing is complaining, etc.