Definitely get a Rheumatologist who understands CREST. I am on schedule to have a Pulmonary Function Test (PFT), CBC, Echo and a twice a year meeting with my Dermatologist. I have had surgeries on my fingers to remove the calcium deposits. I do have acid reflux but I avoid eating late, acidic foods, spicy foods etc and this is under control. I was diagnosed 25 years ago. I practice yoga, this helps so much with the hands and feet mobility and the breathing, lung capacity. Tumeric and Ashwagandha seem to help along with 200mg of Plaquenil and 10mg of Minocycline. Staying as active as possible has been extremely helpful.

Remember you have to fight for yourself and Doctors only know what they know. The young Doctor that diagnosed me so long ago was curious and didn't give up for me. Find a champion and don't settle for less.