Anyone with IEM, Ineffective Esophagueal Motility Disorder?

Posted by maravane83 @maravane83, Jul 22 8:48am

Just diagnosed, may 2024. Do not know no one with this disease. I am sad, confused and desperate because of the symptoms. I confused them with heart issues. Had visit the ER a few times now. Can someone help me out with? Give some orientation

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graceym1 | @graceym1 | Jul 23 8:26pm

I’m sorry you’re dealing with this. I too was diagnosed two months ago. I end up in er once a week with chest pain. My drs said I have irregular muscles I my esophagus. Discovered on my go motility test. They are trying meds to relax muscles so eating and swallowing are easier. I also have eliminated acidic food. Strawberries apples etc. it’s really helping more than the meds. I had to change my diet completely. There is light at the end of the tunnel.

jackielb | @jackielb | Jul 24 7:00am

I take 20 mg of amitriptyline. Some people take 50 and it works. There are other meds out there.

maravane83 | @maravane83 | Jul 24 7:58am

I take 3, piridostigmina, buspar and prevacid. I hate so much meds. Does not work that good. Any chest pain and feelings that your heart is jumping stomach area. I have confused my heart with IEM symptoms. Awwfull feeling

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