@rozy288 @downhillhtr49 Welcome to Mayo Clinic Connect! You’ve come with a real problem, haven’t you? I can’t believe the doctors aren’t helping you deal with your pain!! Is it just a deaf ear when you complain? Have you tried going to a comprehensive medical center/university teaching hospital? the doctors there are more knowledgeable than local doctors. That doesn’t mean that local doctors aren’t good, they just want to have time off! I addded the link to Mayo Clinic care network. These hospitals work closely with the Mayo Clinic.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
I don’t know if any of these hospitals are near, or, at least, no worse than what you’ve been doing. they all have working relationships with Mayo Clinic and share in their research, etc.
Rozy, if you are still looking for a good gastroenterologist, call GARD. https://rarediseases.info.nih.gov/. They keep a list of good autoimmune doctors
Will you let me know when/if you have luck and start feeling better!?