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NTM/MAC/MAI: We must advocate for ourselves

MAC & Bronchiectasis | Last Active: Sep 17, 2022 | Replies (145)

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@heathert

Great thanks @boomerexpert! The amakacin trials seem to show that it is not a cure but may help with management, so there is still no cure out there for most of us, and we need one, even patients who have obtained clear sputums whilst on amakacin have reinfections when they go off it. We desperately need new medications. Together we can make a big difference!

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Replies to "Great thanks @boomerexpert! The amakacin trials seem to show that it is not a cure but..."

My dr put me on 28 bi-monthly regimine of tobramycin (inhaled) so goes straight to only infected area. and bi-monthly 10 day twice daily cipromycin 500 mg. So far, this has been the best treatment for me. I feel normal again. NO coughs!!!