← Return to Prolia/Forteo combination therapy?

Discussion

Prolia/Forteo combination therapy?

Osteoporosis & Bone Health | Last Active: Jul 26 4:18pm | Replies (21)

Comment receiving replies
@hopeful33250

Hello @goosegirl and welcome to Mayo Connect. I can understand your concern about the medication dilemma you are experiencing now. Being given two different opinions within the same medical practice must be confusing.

You mentioned that you are experiencing bad side effects with your current treatment. Could you share a little about what those side effects are? I'm also wondering if you have discussed these side effects with your medical team. If not, this is an important first step. While this might be a great medication, the side effects should be mentioned to your doctor. You are definitely entitled to understand what is going on as you treat this bone loss.

When are you scheduled to have your next Dexa Scan to check on the effectiveness of the medication on your bone density improvement?

Jump to this post


Replies to "Hello @goosegirl and welcome to Mayo Connect. I can understand your concern about the medication dilemma..."

Thank you very much @hopeful33250 . I really appreciate your kindness and the time you took to read and reply to my post.
I reached out to my team a few weeks ago when the side effects became so bad I dreaded waking up because i was in so much pain (particularly waist down, and in my lower back and even more limited in my daily life), but also extremely low in my mood & migraines. I realised I couldn't live like that. It may have been the increased pain causing hopelessness and low mood, or another side effect. It was hard to tell. The nurse was really supportive and spoke to my consultant. She told me to take a 2 day break and I was shocked how dramatically better I felt within 24hrs of not injecting.
However, the consultant urged me to restart after the 2 days and persist because my bones needed the treatment and the sideffects often reduce after a while.
I've really tried and am coping better now. The migraines have stopped and although the pain is definitely high again, I find doing the injection early evening means my midday the following day the pain eases enough for me to focus on others things and I can even get out and about a little more now.
I really am so scared of stopping treatment but I know if my mental health deteriorates too much again I do need to reconsider continuing because of my mental health history/existing conditions.
I will talk to the nurse and ask if it's possible to have an appointment to discuss prolia in sync with teriparatide. Plus discuss other options if things reach the point I cannot continue the treatment due to side effects.
Thank you very much. Sending love and hope x