Finally relief from peripheral foot neuropathy! (my story)

Posted by cln1812 @cln1812, Jul 18 8:34am

I have had peripheral foot neuropathy for a few years. At first it was just numbness and minor tingling. Then the tingling was so bad, it was like it hit me down to my very core. In December, I had a psychiatric hospitalization for bipolar mania. At that point, I was taken off a lot of the psychiatric meds I had been taking. I developed severe cramping in my feet following the hospitalization. I saw a neurologist who sent me for bloodwork and did an EMG. He found my iron was a bit low along with folic acid. I started taking iron supplements and folic acid. After the EMG, he diagnosed me with peripheral foot neuropathy and a pinched nerve in my neck and minor carpal tunnel syndrome. He came to the conclusion the neuropathy was idiopathic since I don't drink at all and I wasn't diabetic since my A1C was normal.

At that point he put me on gabapentin. I didn't really notice any difference. He add oxycarbazepine and I STILL didn't notice any difference. The foot cramping was especially bad when I lay in bed trying to fall asleep and made it difficult to sleep. I got discouraged I would ever find anything to help.

I tried a lot of different supplements people mention on this site. Still no improvement.

In late spring, I got severely depressed and the neuropathy was a huge part of it. I mean, I could see how people with neuropathy get so depressed they don't want to live anymore. I was at that point. My psychiatrist put me on Cymbalta 30 mg once daily for the depression. The Cymbalta started to help the depression quickly. After the first week, I started to notice maybe a minor improvement in the foot tingling. After a month to 5 weeks, the tingling was entirely gone. But I still had the cramping and that was just as bad as the tingling.

I recently had a round of mania. At which point my psychiatrist added Lamictal (lamotrigine) 200 mg twice a day to my psychiatric meds. Wow! Within 2 weeks the cramping was entirely gone.

I know the most of the literature out there says Lamictal only possibly helps with neuropathy and my neurologist wouldn't prescribe it for me; I got it from my psychiatrist as Lamictal is commonly used to treat bipolar disorder. Lamictal was incidently one of the medications the hospital had taken me off of in December, and that was exactly when the foot cramping began. My neurologist wouldn't prescribe it because of my mental health issues, but I got the picture he would have if I didn't have bipolar and panic disorder.

If you are at the end of your rope with foot neuropathy and your neurologist will prescripe Lamitical for you, it is worth trying. Better yet, if you go to a psychiatrist, see if he will prescribe it. Don't try it without being monitored by a professional doctor, of course.

I still do have the numbness with the neuropathy, but honestly, that is something I can cope with. The tingling and cramping not so much.

I realize this may not work for everyone, but I just wanted to share my story.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@solobeee1

Let’s not forget LDN~Low Dose Naltrexone that works very well for pain but unfortunately, not for numbness.
See more here:
https://ldnresearchtrust.org/conditions

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Does it make you sleepy all of the time or “loopy”??

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I take 4.5 mg of LDN late afternoon & generally feel no side effects. Overall, my thinking is clearer with no brain fog or loopy feelings.

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@26sabrina

Yay for you.
I too went through several medications and so many types of external modes to relieve the awful burning in my feet. I saw a new neurologist who started Nortripyline. I started at 10mg daily and progressed to 40mg daily. I am finally able to sleep through the night with no burning. My feet do feel kinda heavy and I do feel little burning at the end of the day.
This has been a game changer for me.
Maybe this medication will help someone else.

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Did you try Lyrica?

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@omega101

Another Nortriptyline success! I too went thru every 2 years of burning legs and feet due to it is believed, Covid Vaccine injury! Six weeks ago, my neurologist suggested I try Nortriptyline, as it works in many persons, not everyone! It is an old anti-depressant (since 1960's), which was found to help nerve pain. I highly recommend anyone suffering from this debilitating pain to consult a neurologist, not a general practitioner. They are specialists! I take 20 mg. at night and can finally sleep and function during the day! I feel normal again.

I too hope by sharing this, it will help others with their struggle.

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Did you try Lyrica?

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@cats0cats2

Did you try Lyrica?

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Hi,
No, my neurologist prescribed Gabapentin, which made me loopy. He felt that with my symptoms to try Nortriptyline. He said it does not work for everyone, but when it does......it really works. I feel fortunate right now.

I think Lyrica may be in the same 'class' as Gabapentin, although I am not a pharmacist.

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omega101 Yes, Gabapentin is the same as Lyrica. They are all apparently in the same class of drugs. Drugs related to Lyrica. "Gabapentin" Duloxetine Amitriptyline Tramadol Venlafaxine Mirtazapine Baclofen
Drugs related to Nortriptyline. Amitriptyline Imipramine HCl Mirtazapine Desipramine Duloxetine "Gabapentin" Venlafaxine. Strange how one works and another one does not and how a Neurologist thinks one medication (same class drug) might work vs. another one. AND Yes Gabapentin does make me loopy which is why I am trying to wean off of it again next week.

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@solobeee1

After reading your story I feel you are now drug dependent when you should also be talking about alternatives for your mind like exercise or yoga which works to make you less dependent on drugs. It should certainly be a good alternative to drug dependency.

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I agree ! My neurology gotten worse last February 2024 with swollen ankles and feet ! I have been on gabapentin since with antidepressants and vitamin B supplements . But I have found out walking 2 miles a day has ease the pain and depression. I just went to have blood work done and found out I have uric acid ! Another issue to deal with !

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@andrez

I agree ! My neurology gotten worse last February 2024 with swollen ankles and feet ! I have been on gabapentin since with antidepressants and vitamin B supplements . But I have found out walking 2 miles a day has ease the pain and depression. I just went to have blood work done and found out I have uric acid ! Another issue to deal with !

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Welcome @andrez, Swollen ankles and feet might be a sign of gout. I've had it before and it is painful and difficult to walk. I had high uric acid levels in the blood also but it doesn't always indicate gout. Mayo Clinic has some information on the diagnosis and treatment here - https://www.mayoclinic.org/diseases-conditions/gout/diagnosis-treatment/drc-20372903.

The Foundation for Peripheral Neuropathy has some good information on living well with neuropathy here - https://www.foundationforpn.org/living-well/.

Did your doctor suggest any treatment to help with the swollen feet and ankles?

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Extremely extremely helpful
Thank you so much!!
Please keep very closely in touch if you can!

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@cats0cats2

omega101 Yes, Gabapentin is the same as Lyrica. They are all apparently in the same class of drugs. Drugs related to Lyrica. "Gabapentin" Duloxetine Amitriptyline Tramadol Venlafaxine Mirtazapine Baclofen
Drugs related to Nortriptyline. Amitriptyline Imipramine HCl Mirtazapine Desipramine Duloxetine "Gabapentin" Venlafaxine. Strange how one works and another one does not and how a Neurologist thinks one medication (same class drug) might work vs. another one. AND Yes Gabapentin does make me loopy which is why I am trying to wean off of it again next week.

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Thanks for your input
Only we can ultimately
solve our problems!!

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