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Long-term radiation side effects post surgery: Any experiences or data

Prostate Cancer | Last Active: Jul 24 8:56am | Replies (7)
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@colleenyoung

Hey @cedard, allow me to tag a few members to kick-start this discussion like @big220al @web265 @kujhawk1978 @jeanadair123 @john57 @stoney @perrychristopher @hammer101 @northoftheborder who I *think* had radiation after radical prostatectomy. I don't know who is 10 years out, however. (I adjusted the title a wee bit too.)

Dave, when were your treatments or what was your timeline? Are you experience long-term or late side effects?

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Replies to "Hey @cedard, allow me to tag a few members to kick-start this discussion like @big220al @web265..."
Dave | @cedard | Jul 23 4:45pm

Thanks Colleen. Appreciate the tags. I'm 55. Had a RALP 5 years ago July 2019 - (Age 50). Officially hit .2 (1) year ago and am maintaining at a .2 (Have had (4) PSA tests in last year). My case is officially labeled a BCR.

1st Urologist says at my age he would wait to PSA hits .4 or higher to do radiation, because of late term side effects not kicking in until 10-15 years after radiation. My decipher score recently came in at High Risk (.87) even though I have a very low doubling time. Had extracapsular extension at time of surgery as well. (2) Local Radiation oncologists want to radiate pelvic lymph nodes, prostate bed, and put me on hormone therapy for 6 months.

Since I'm maintaining at a .2, I'm trying to decide if it's worth the risk of long-term side effects of radiation based on other people's experience. Specifically, I'm considering proton radiation but looking for either proton or photon experiences from others that are at a minimum of 10 yrs. out. Thanks - Dave

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