Hi, I hope everyone is coping at worst and really well at best. I'm a bit confused and worried about recent treatment I've been put on for my extremely severe osteoporosis. I hope someone may be able to help. I was put on Forteo in 2016-2018, and fortunately tolerated it well. Then I received 2 zolendronic acid infusions.
I then moved home and treatment team. In 2023 a consultant I saw told me that I absolutely needed to be on Prolia/denosumab. So I had 2 injections over a year. In my follow up annual appointment I saw a different consultant of thr same team and he said I should not have been put on Prolia because I'd had forteo and it wouldn't work/be any good.
He then said he felt putting me on Forteo for another 12 maths 2024-2025 was the best chance to help me.
Unexpectedly, I have been experiencing bad side effects but I am determined to continue because I'm so desperate for my bone density to improve as it's still -3.4 (?).
I was confused because tge previous consultant insisted that prolia is 'Gold standard' and is the absolute best option.
So to be told different information by a consultant of the same team is concerning.
I've since looked into having prolia after or in combo with forteo and it seems there's a lot of evidence that the combination is actually really effective. Now I'm not sure who is right. What to do or whether to ask if, while I'm on forteo could I also continue prolia? Or is that greedy? I don't want to ask for too much or seem entitled. Thank you for listening and any advice . Take care, Goose x