← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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@pak5000

These posts look pretty old, but i am going to join in the discussion with the idea there is always someone new joing up (like me).

History of back problems for almost 20 years before i was diagnosed with DISH. Before that it was just called degenerative disc disease and i was told "everyone got that". Well, 4 back surgeries (2 spinal fusions within 2 years) and a neck surgery. Looking at another spinal fusion (which will make it S1-L2) sometime this year. It has been quite an education. The XRAYs show growths on all my vertebrae fusing with the vertebrae above and below them. Arthritis simply everywhere. Knee surgery. Shoulder surgery. Ankle issues. It is slow but it never goes away.

The worst part is the lack of sleep (due to pain). Which makes it harder to power through the day. I have some exercises i learned in PT. i try to do some walking. Best results from just adjusting my routine, Investing in DME - handrails for the toilet and bath, a bench for the bath, grabber tools. JUst finding ways to make every day tasks easier and safer. There are some medications, but i hate taking a handful of pills 3 times a day.

There is also the diabetes and sleep apena. And last year a diagnosis of Parkinson's. Makes it hard to enjoy my hobbies, but giving up is the worst thing you can do. Find strength in things you love. In friends and family. Wait for a cure.

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Replies to "These posts look pretty old, but i am going to join in the discussion with the..."

@pak5000 I wanted to welcome you to Connect. You have a great outlook on finding strength and new ways to do things. I'm not a DISH patient, and I wanted you to know your input is valued. It will help someone even if they don't join Connect and start posting because there are many more people reading that you never see.

How soon are you being scheduled for further surgery?

Pak I’m so sorry for what you’re going through. I was diagnosed with DISH A few years back, but I believe I’ve had it for what might be 27 years that I can think of. Please go back through and read some of the posts And you will see that different people have had some different experiences. Don’t be afraid to ask questions of your providers. And look to see if you can find providers that Have a little bit more knowledge About this disease and in normally that might be a rheumatologist or spine specialist in my experience. I wish you the best. You could always come back and ask a question And those of us who have had it for a while, can help you. 🙏

How can you get surgery? I need it but was told that now because of DISH no surgeon will touch me with a ten foot pole. I was told that by a surgeon.