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@cyp238ress

I've thought about CIDP, although I've had this elevated CSF for 30 years now, and I show no signs of demylenation on physical exam or EMG. But I'll bring it up with the neurologist on Friday.

I just wonder: is my neurological history such that I should not consider spine surgery?

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Replies to "I've thought about CIDP, although I've had this elevated CSF for 30 years now, and I..."

@cyp238ress
I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves that are know to be causing your symptoms. If it is not clear what is causing your symptoms, it would be good to delay surgery until you try other non-surgical treatments and get more testing. I have been on a journey for 8 years trying to get answers and treatment for my long list of symptoms. It has been a process of ruling out some things and treating what could be diagnosed. I am now at a point the lumbar pain/weakness/numbness are the significant remaining symptoms to address. When I spoke to the surgeon, he said that I may still have residual symptoms from cervical myelopathy injury (delayed diagnosis) and SFN/PN. But the lumbar surgery (possibly laminectomy and fusion, see surgeon tomorrow to discuss options post updated MRI) should be able to help relieve the severe central/foraminal stenosis L4-L5, stabilize my spine since vertebrae is moving/slipping over other vertebrae, and neurogenic claudication restricting blood flow/impacting nerve signals.

You may want to see if you could get a myelogram test to pinpoint the nerves impacted to see if surgery would help relieve any compression. If CIDP is a possibility, you may need a full work up to see if your immune system is attacking your nerves indicating surgery may not help relieve the symptoms.

Pray you get answers asap. 🙏