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@cyp238ress

I had a spinal tap approximately 9 months ago, and it came back with elevated spinal fluid protein (125). I have had a consistently elevated CSF since I was diagnosed in 1994. The doctors have no idea why I have neuropathy, although I strongly suspect a genetic component.

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Replies to "I had a spinal tap approximately 9 months ago, and it came back with elevated spinal..."

@cyp238ress
If you have elevate proteins in your spinal fluid, you may be at early stages of CIDP (chronic inflammatory demyelinating polyneuropathy) which is autoimmune attack on myelin/nerves. If this is diagnosed, you would want to get therapies to delay/slow the progression. My understanding is a neurologist usually diagnoses this and not sure if a rheumatologist can help with special bloodwork/therapies.