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@dlydailyhope

@cyp238ress
Have you had extensive bloodwork, seen a rheumatologist to check for autoimmune illness, had a spinal tap to check for CIDP? I hear you, when you have so many symptoms it is hard to tell what is structural/mechanical vs. systemic. My surgeon said that EMGs of upper/lower limbs are not good for diagnosing spinal cord/nerve root/nerve health. My recent lower EMG came back “normal” but I have significant lower back, hip, buttock, leg and foot pain/weakness/numbness. Most likely my L4-L5 severe stenosis and neurogenic claudication is contributing to these symptoms plus I have residual spinal cord injury from C5-C6 that affects my brain/body communications below that level.

Good luck getting answers asap!

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Replies to "@cyp238ress Have you had extensive bloodwork, seen a rheumatologist to check for autoimmune illness, had a..."

I had a spinal tap approximately 9 months ago, and it came back with elevated spinal fluid protein (125). I have had a consistently elevated CSF since I was diagnosed in 1994. The doctors have no idea why I have neuropathy, although I strongly suspect a genetic component.