@dlydailyhope,
Thanks for replying. I too have small-fiber neuropathy diagnosed via punch biopsy. The neuropathy has made this whole mess complicated, since I'm not sure which symptoms are "mechanical" (i.e., pinched nerves, arthritis, etc.) versus the neuropathy. I also deeply worry how I will respond to spine surgery due to the neuropathy.
I have seen probably six surgeons now. Some have advised surgery, some not. I have had PT, five steroid injections, fascial counterstrain, feldenkrais, Botox, etc, etc. I also had EMG's recently, and they only showed mild C5-6 chronic nerve root compression. The doctor said there is "no evidence of nerve disease", so I'm thinking that the arthritic changes are really driving the spasm and pain. I am seeing yet another surgeon on Friday who has an outstanding reputation, so we'll see what conclusions he reaches. Also scheduled to see neurologist on Friday and want to really ask hard questions, because surgery obviously wouldn't help if a large component of my pain is instead being driven by some neurological syndrome. I do wonder if something akin to cervical dystonia is going on.
@cyp238ress
Have you had extensive bloodwork, seen a rheumatologist to check for autoimmune illness, had a spinal tap to check for CIDP? I hear you, when you have so many symptoms it is hard to tell what is structural/mechanical vs. systemic. My surgeon said that EMGs of upper/lower limbs are not good for diagnosing spinal cord/nerve root/nerve health. My recent lower EMG came back “normal” but I have significant lower back, hip, buttock, leg and foot pain/weakness/numbness. Most likely my L4-L5 severe stenosis and neurogenic claudication is contributing to these symptoms plus I have residual spinal cord injury from C5-C6 that affects my brain/body communications below that level.
Good luck getting answers asap!