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Hi @esb13
My OP scores improved greatly post-bone-building drugs and I didn’t have any real physical issues prior to starting Tymlos. After stopping Tymlos, the issues resolved within days, so I can aver with pretty complete certainty that it was Tymlos that caused them. The daily injections, although inconvenient, were of no consequence.
The adverse reactions to Tymlos, to name but a few, were constant nausea, pain and tightness in my chest to the point where I couldn’t draw a breath, constant and debilitating pains across my shoulders and collar bone and rapid (100+ bpm) heart rate. I lived on Advil, Tylenol and Ondansetron, however, none of these actually provided any relief. There are other consequences, i.e., many doc visits - pain management, ER, cardiologist, PCP, rheumatologist, gastroenterologist, spinal neurosurgeon, PT, MRI . . .
These are just my experiences and as I swapped out Evenity for Tymlos (after 8-1/2 months), I can’t really say which med worked better at bone building. What works for one may not work for others - Windyshores has had fabulous results with Tymlos but couldn’t tolerate Evenity. Unfortunately it took some time for me to convince my doc that these adversities were caused by Tymlos were not related to my OP or frax. Be your own advocate - if something feels wrong, speak up, loudly!
Happy, Happy, Joy, Joy! Cheers!
Replies to "Hi @esb13 My OP scores improved greatly post-bone-building drugs and I didn’t have any real physical..."
That's such a strong reaction. I don't think I could have endured that for more than a day or two.
Am I understanding correctly that you were on Evenity for 8-1/2 months, then started Tymlos? If so, you're the first person I've heard of who did that sequence of treatment. I wish you knew which worked better for you. It seems to be a big "unknown" as to whether taking Tymlos after Evenity is effective at all. I would hate to think your suffering was all for naught.
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Hi! Wow, this sounds like a lot to manage and I am so sorry for your adverse reaction to Tymlos and so glad you were able to find relief once you stopped and started a new regimen.
I hope you continue to improve and feel strong and vibrant!
I've just begun month 3 of Tymlos and so far so good, but of course it's all about the numbers so I won't learn if it's working for me until I have more tests. I have a P1NP after 3 months and a DEXA after 6. Any improvement will be most welcome! My spine is currently at -3.