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@hrojzen0922

Thank you, Celia, for sharing these details. I am unfamiliar with Salzmanś nodules, but just did a quick read about this disorder. I see that it is believed that dry eye (including the form caused by meibomian gland dysfunction) and infectious blepharitis can contribute to or trigger the disorder, and also that the nodules are associated with disruption of the corneal epithelium . . .Hmmm . . . I don´t know anything about the nature of this disruption, though, or whether it presents with swelling/waterlogging of the corneas, and so I cannot even guess whether it would be advisable, or even safe, to use something like Muro on your ocular surfaces in hopes of either alleviating symptoms or arresting the formation of nodules. I will say this, though, after 25 years of seeing a vast number of ophthalmologists and dry-eye-specializing optometrists: Many doctors are mentally locked into algorithms or protocols that they associate with particular diagnoses, and as treatment options expand and change, over time, older treatments that may actually have been effective, but which involved nonsurgical or inexpensive OTC products, are forgotten or become disfavored. When my eye doctor proposed Muro for me, I asked her whether it was really safe to use Muro off-label for dry eye (knowing, though, that before the most basic OTC drops for dry eye were ever invented, eye doctors ROUTINELY prescribed Muro to treat simple dry eye). My doctor assured me that I could use Muro safely even though I don´t have corneal dystrophy, and that the daily tightening-up of my corneal epithelium via Muro would be healthful and not harmful. So I will speculate here that the reason your specialists have not recommended Muro is because 1) Muro may never have been studied in relation to your disorder, 2) Muro has been deemed harmful or ineffective for your disorder, OR 3) Muro is considered, by many younger eye doctors especially, to be a sort of relic or outdated therapy even for the ocular surface diseases for which it was originally designed. If you approach your doctors about Muro, in any case, I would be very interested to learn the reaction you receive. In meantime, though, if you haven´t already done some online research into whether Muro has been studied in relation to your disorder, go ahead and explore that, as that will help you formulate the questions you pose to your eye doctors. Iḿ tempted to add one last gnawing thought here: Have you ever explored the possibility that Salzmanś nodules may be associated with (even if not causally) some particular nutritional deficiency? The sixteen different health issues I have dealt with, over my long lifetime, so far, have all, in peer-reviewed researching reporting, been associated with B1 deficiency (subacute), and yet not a single doctor I have ever seen has shown any interest in drawing any connection across my sixteen problems. They have not been looking for any unified cause for my health picture, and so treatment approaches have all been band-aids, often taking the form of powerful pharmaceuticals that have caused me secondary problems. These days, I am asking all the people Iḿ close to to consider whether any collection of maladies they´ve experienced may be connected by a unifying cause or sequence of causes, because I have become convinced that more of us have undetected and underdiagnosed nutritional deficits than is popularly believed. I see that Salzmanś nodules may be hereditary . . . but I would not let that stand in the way of exploring for nutritional connections nonetheless, because some nutritional deficiencies actually arise as a result of genetic glitches, and these deficiencies can often be remedied by steady nutrient replacement, even if the precipitating genetic glitch cannot be corrected.

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Replies to "Thank you, Celia, for sharing these details. I am unfamiliar with Salzmanś nodules, but just did..."

I will explore the Muro option and inquire about it with my ophthalmologist.

A few years ago I was undergoing a particularly rough patch with my eyes and researched options besides the eye scrub, ointment, drops, warm compresses, avoiding fans, etc. I found a study that said acupuncture proved helpful. My ophthalmologist approved the idea and I went through Duke Integrative Medicine. I found a very gifted and experienced acupuncturist there. He developed a plan for me and after 2 weeks I saw amazing results. I continued with it until I felt stable. My ophthalmologist was surprised and she told she now informs patients about this option. I would like to return for maintenance. It is expensive though and not covered by insurance. The acupuncturist is now solely in private practice, but I would definitely return to him. He is incredibly gifted. He used other methods to treat some of my foot and back pain with incredible results.

I am now being treated for Vitamin B12 deficiency and suspect it has contributed to my eye issues, among other things. My neurologist is treating me. I’m angry that wasn’t discovered long ago considering my regular health care visits and compliance with medical advice. Anyway, working towards recovery now and seeing some improvements.

I appreciate your perspective.