Connect
← Return to Anyone have side effects after Lanreotide injection?
Discussion
Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: Nov 2, 2024 | Replies (35)Comment receiving replies
I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed some of my intestines and lymph nodes. The surgery went well, I haven’t had any more tumors in small intestines but 5 years later the tumors showed up in my liver. I am still taking the lanreotide with a few side effects. The first 2 years I didn’t really have much side effects, but now my tumors are starting to grow a little bit. I have scans scheduled this week at the Mayo in Jacksonville. The oncologist wants to start me on a treatment called Lutathera. My prayers are with you and your family. I will pray that God will heal you from all cancer and sickness. God Bless
Replies to "I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed..."
Connect
@steven1953: I am sorry that you are dealing with the uncertainty of tumor progression. My situation has some similarity to yours. Diagnosed 10/22- 2 years Somatuline Depot 120mg every 28 days, but 3/24 MRI showed small intestine primary had grown into stomach and liver metastases had also progressed. I went to City of Hope for 2nd opinion and treatment advice from renound NET Oncologist. I found that a large CANCER hospital offered best scanning results, more treatment options as well as cutting edge expertise.
I chose PRRT Lutathera Infusion therapy and will receive 2nd infusion 8/8/24. So far so good with minimal side effects and hopes for tumor control for several more years with quality of life. At 79 yrs I thought this was my best option, but it is really a crap shoot. Best to you!